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23andMe

23andMe, Inc. · Genetic Testing

Staff Reviewed — a person at DeSpy reviewed this rating.

6.4Surveillance
Index
Policy — what its policy permitsD
Evidence — what research provesF

23andMe holds the single most sensitive and permanent category of personal data: your genome. From a saliva sample it derives ancestry composition, ethnicity estimates, carrier status and health-predisposition reports, and — through the DNA Relatives feature — maps your biological family network, exposing data about relatives who never consented. It also collects self-reported health surveys, and historically shared de-identified genetic data with pharmaceutical research partners (e.g. GSK). Your DNA cannot be changed or reissued if it leaks.

Why this rating

Deductions: collection of genetic and health data is maximally sensitive (-15); research-partner and pharma data-sharing plus a bankruptcy/M&A transfer clause create broker-style disclosure and unilateral-transfer risk (-15 / -5); the company added a forced-arbitration clause to its terms after the 2023 breach (-5); indefinite retention and vague processing language (-8 / -7). Users can opt out of research and request deletion, which prevents deeper cuts.

What it is

Manufacturer
23andMe, Inc.
Category
Genetic Testing
Model years
2007-present
Market status
Current
Companion app
23andMe

The evidence 3

Independent research, regulatory action, lawsuits and journalism about how this device handles personal data — the "what actually happens" axis. Each links to its source.

  1. Journalism · NBC News · 2025-03

    23andMe's 2025 Chapter 11 filing put its genetic database up for sale, prompting multiple state attorneys general to urge users to delete their DNA before a new owner could acquire it.

    Why it matters here: Shows the durable risk that this service's DNA archive changes hands through corporate insolvency.

  2. Breach report · HIPAA Journal · 2023-12

    A credential-stuffing attack on ~14,000 accounts cascaded through the DNA Relatives feature to expose personal and ancestry data of about 6.9 million users, including targeted datasets of Ashkenazi Jewish and Chinese users.

    Why it matters here: Directly exposed this service's users; genetic-relative data is immutable and cannot be reset like a password.

  3. Regulatory action · Cybernews · 2026-07

    A bipartisan coalition of 42 state attorneys general secured an $18M settlement over the 2023 breach, faulting 23andMe's lack of MFA, login rate-limiting and compromised-credential screening.

    Why it matters here: Multistate regulatory action specifically over this company's security failures.

Are you the maker? Respond to this finding

Free. There is no paid or faster path, and nothing about a rating is for sale. Prove you control your company's domain with one DNS record; a person then reads your statement beside our finding and decides whether to publish it.

An email is encrypted at rest and opened only to answer you; it is erased 30 days after we resolve this (or 180 days if still open), and you can erase it sooner. Unproven filings are deleted after 14 days.

Think something here is wrong?

Evidence and research improve when people push back. Tell us what to re-check — a misattributed domain, an outdated classification, a claim about your own app — and a human will review it. Responses can take up to 30 days.

If you leave an email it is encrypted at rest and opened only to answer you — never shared, never used for anything else. It is erased 30 days after we resolve this (or 180 days if it is still open) without you asking, and you can erase it sooner at any time; either way your correction stays, anonymously. Leave it blank and your request is fully anonymous from the start (we store no IP address either way).

Descriptive, cited, not legal advice; ratings are versioned and corrections create a new version. Data from the IoT Info Grabber DB research project, CC BY-SA 4.0.

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